The Boy Whose Skin Fell Off 2004

Release Date: 2004
Alt Title: The Boy Whose Skin Fell Off
Genre: Documentary

Overview

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) – which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to doc… Read all

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